Sunday, December 13, 2009
Energy or Lack of
I haven't been able to maintain my energy level to get thru a day without a nap lately. This occurrence I've observed has been happening consistently after my infusions. So, taking note and hoping this isn't a side affect that is here to say. I'd really rather not add another medication to counteract the side affect of another. And of course typical of the fatique I don't realize it until I hit a wall and I realize I'm extremely tired and must sit and rest or take a nap to get thru the rest of the day. And like others it doesn't interfere w/ the rest I get in the evening. Still as tired at bedtime as I'd normally be. Fatique and increasing occurences of pain seem to be my new companions in the progression of this disease. I feel bad for the kids since our mealtimes have been what's quick and easy and not really special anymore. They really appreciate meal times @ the table as a family and that's been non-existent. Anyway...what to do? Adjusting to new realities will have to be a skill I acquire quickly and can practice well. To top it off I have another stress cold sore. This is the 3rd one in the past 6 months. Might be something I mention to my neuro since happened several times now. They're painful too. Well, guess it's time to start laying out must-do activities and picking out which ones the most important for each day. That way what needs to happen gets done and I don't feel guilty. These are the times I wish I had a partner/spouse to rely on. To help keep the balance and life going since I can't be @ full force. Or should I be thinking "manage to learn to live like this" since this could be my reality?
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